Recent publications & talks

Pietrzak-Franger, Monika – Long Covid and ME/CFS: When the Doctor Does not Believe You
(transl.: “Stigmatisiert und ignoriert: Die stille Krise hinter dem #Frauenticket”) Under the hashtag #Frauenticket, thousands of women are sharing their experiences of not being taken seriously by their doctors. In a guest article for research magazine “Rudolphina” (University of Vienna), Monika Pietrzak-Franger explains why patients suffering from Long Covid and other chronic illnesses often face multiple forms of stigma… Read more

Pietrzak-Franger, Monika – Long Covid as a Collective Experience: A Photo Essay. Re:visit: Humanities & Medicine in Dialogue 3.1 (2024) – open-access journal
Although diseases manifest themselves in individual bodies, they usually have multiple, and often systemic, causes. They do not only affect one’s immediate social environment, but whole cities and nations. The pandemic has demonstrated the extent of these interdependencies: a butterfly effect which makes clear that a virus, animals, humans and the environment cannot be thought of separately… Read more

Pietrzak-Franger, Monika – “Long Covid Participatory Research: Showing the Invisible,” The Future of Medical/Health Humanities (Workshop, Rice University Medical Humanities Research Institute, Paris, France)

Pietrzak-Franger, Monika – Long Covid: Digital Health Technologies, Patient Activism, and Illness Narratives. Hard Times Magazine 107 (2023), pp. 105-120
There are over sixty-five million people worldwide suffering from Long Covid. The condition, though largely accepted asa diagnosis, does not yet have a legitimate status. Patient organizations have used analogue means and digital technologies to raise awareness and draw attention to Long Covid’s long-term effects. In this article, Monika Pietrzak-Franger (University of Vienna) takes a quick glance at the ways in which digital health technologies may be used in the fight for recognition and legitimation, knowledge creation, and community building. She pays particular attention to the downsides of online illness narratives and iconographies that have appeared in this context.

Events

Pietrzak-Franger, Monika – Long Covid Care: Eine Podiumsdiskussion (16 January 2023, Vienna)
This “round table” offers a multifaceted perspective on the relatively little explored disease Long Covid. Both experts from various fields and patients, who can report on their experiences with Long COVID and participate in the discussion with experts, are invited to this exchange. The discussion is devoted to topics such as the experience of the disease, the current state of medical research, existing and still needed treatment paths, as well as the social and cultural perspectives of the disease.
The aim of this event is, on the one hand, to create space for the experiences of those affected and thus to offer an opportunity for identification for people with similar experiences. On the other hand, sharing and exchange of information about possible treatment options can serve as a resource for those affected. By discussing available treatment paths, we intend to create a greater awareness of possible obstacles to accessing them and of resources that may still be missing.

Related research by the project team